When her daughter desperately needed a lung transplant to survive, Janet Murnaghan rallied against the outdated restrictions in healthcare that would limit her daughters options.
Sarah had been dying of cystic fibrosis since the day she was born.
The disease quickly ravaged her lungs and little body bit-by-bit.
Fragile and frail, she had only weeks to live, when her mom realized the reality of Sarahs situation: transplant laws, restricting access to lungs based on arbitrary age restrictions, meant Sarahs options were limited.
The injustice of her daughters fate spurred Janet to start a public battle against outdated health care regulations and a battle to save Sarahs life.
Janet transformed her pain and desperation into a voice for Sarah and other kids using social media to broadcast the unfairness, which was robbing Sarah of her right to life with the help of friends and family who emerged as Sarahs army.
How does a family navigate catastrophic illness and life in a hospital, while still maintaining a sense of normalcy? Saving Sarah is a story of hope and courage, and a mothers determination to never give up.
Its also the story of how a family--Janet and her husband Fran have four other children--reacts and adjusts when one of its members is in ongoing crisis.
I need to fight, and I cannot fight and fall apart at the same time.
Each single moment is all that matters.
--from Saving Sarah About the Author: JANET MURNAGHAN is a former television news producer and public relations executive.
When her daughter Sarah was denied a life-saving double lung transplant, she led a campaign to save her daughters life with the support of the media, members of Congress, and the general public.
Formerly from the suburbs of Philadelphia, she now lives in Florida with her husband and five children.
Saving Sarah is her first book.
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